Diocese of Kansas City-St. Joseph Respect Life Office
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Fetal Anomalies & Special Diagnoses


This page includes information and links to local organizations with which the Respect Life Office has directly worked to provide families with life-affirming support during a time of need.  To learn how your organization can be included in our list of resources, please contact the Respect Life Office.

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Alexandra's House  -- 638 West 39th Terrace, Kansas City, MO 64111, (816) 931-ALEX 2539), www.alexandrashouse.com

Alexandra’s House is a local community based, all volunteer, peer-led perinatal hospice and infant care system for parents pregnant with babies with lethal or sub-lethal anomalies, for pregnancies that end unexpectedly at any point, from any cause, and for infants who die in the community, any cause.  Alexandra’s House does not interfere with or substitute for any existing medical, social, or hospice agencies’ services.  What it does is to help fill in the many gaps in care that do exist, as defined by those who have lived the experience of caring for a dying unborn or newborn baby. 

Short videos about Alexandra's House:
A brief overview of the ministry of Alexandra's House 
One family's story of how Alexandra's House helped give meaning to the cross with which the Lord had blessed it

​The ideal time to consult Alexandra’s House is at the time of diagnosis or loss 
so parents are fully informed and to help alleviate some of the acute  anxiety and very common feelings of isolation and abandonment.  Alexandra’s House does not charge for its services nor does it accept contributions from people they serve.   

          Services include:
          -  bringing meaning to suffering 
          -  assistance in grief resolution 
          -  parent-parent partnering 
          -  birth planning 
          -  funeral planning 
          -  long-term support 
          -  one to one and group meetings 
          -  pre-natal and post-natal housing, if required 

If a baby survives and is dismissed from the hospital, the family and baby can stay here for the duration of their life.  Professional nursing services are  provided through a licensed hospice agency. 

Please prayerfully consider visiting www.alexandrashouse.com or emailing care@alexandrashouse.com to learn more about Alexandra’s House and how you can provide much needed healing to your fellow-parishioners, family and friends who are suffering.  In the meantime, please review Supporting Families Who Receive a Prenatal Diagnosis, an on-line resource available from USCCB.


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Down's Syndrome Guild of Kansas City -- 10200 W. 75th Street, Suite 281, Shawnee Mission, KS 66204, (913) 384-4848, www.kcdsg.org
     
Receiving a diagnosis that your baby will have Down syndrome can be overwhelming.  We are sure you are experiencing a range of emotions as you adjust to the diagnosis of Down syndrome.  We invite you to contact our organization to offer you support.  Contact info@kcdsg.org to be added to our mailing list, to request a welcome basket and receive Family and Friends support packets, to request a parent to parent match or to receive a support breakfast invitation.

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Support Organization for Trisomy (SOFT) -- www.trisomy.org
     
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other  related chromosomal disorders.  Support can be provided during prenatal diagnosis, the child’s life and after the child’s passing.  SOFT is committed to respect a family’s personal decision and to the notion of parent-professional relationships.
     
Scott & Sheryl Crosier, SOFT MO Chapter Chairpersons, 1155 Hawken Place, Webster Groves, MO 63119, (314) 961-8035, smcrosier@sbcglobal.net

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St. Louis Fetal Care Institute -- 1465 S. Grand Blvd., St. Louis, MO 63104, (314) 577-5600, www.cardinalglennon.com 
    
SSM Cardinal Glennon Children’s Medical Center, SSM St. Mary’s Health Center, and the St. Louis University School of Medicine collaborated to form the St. Louis Fetal Care Institute in the Spring of 2009.  The Institute was formed under the principle that with advanced diagnostic tools, a team-oriented approach, and highly skilled, dedicated specialists, unborn babies with complex problems would have better outcomes and families would have better patient satisfaction.

The St. Louis Fetal Care Institute is comprised of a team of  knowledgeable fetal and pediatric surgeons and maternal fetal medicine specialists, with the guidance of fetal care coordinators, neonatologists, pediatric specialists, anesthesiologists, genetic counselors and ultrasound technicians.  The goal of the St. Louis Fetal Care Institute is to provide a positive experience that recognizes the uniqueness of each case and family situation.  The entire team aims to provide families with the most accurate diagnosis, while helping them understand their situation and prepare for the birth and needs of their baby or babies.  

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Prenatal Partners for Life -- PO Box 2225, Maple Grove, MN 55311, (763) 772-3868, www.prenatalpartnersforlife.org

Prenatal Partners for Life is a group of concerned parents (most of whom have or had a special needs child), medical professionals, legal professionals and clergy whose aim is to support, inform and encourage expectant parents with an adverse prenatal diagnosis or new parents raising a child with special needs after birth..

PPL offers support by connecting parents facing an adverse diagnosis with other parents who have had the same diagnosis. They have many resources such as adoption agencies with clients waiting to adopt and love a special needs child should a parent feel they cannot care for them.


“Catholics must be committed to the defense of life in all its stages and in every condition”
                                                                                                                                                                                              St. Pope John Paul II, 1995

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Respect Life Office ~ Diocese of Kansas City - St. Joseph  ~ 20 West Ninth Street ~ Kansas City, MO 64105 ~ ​(816) 756-1850 ~ francis@diocesekcsj.org
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  • HOME
    • News & Communications
    • Share Your Gifts
    • About Us
  • Pastoral Programs
    • 40 Days for Life >
      • Our "Message"
    • ComPassio
    • Gabriel Project >
      • Walking With Moms in Need
      • Kansas City Pregnancy Clinic & Mercy and Truth
    • Knights of Columbus >
      • Meet Life (Missouri)
      • Faith in Action (Supreme)
    • Life & Justice Campaign
    • March for Life
    • Project Rachel
    • Spiritual Adoption
    • Stand Up for Life
    • Catholic Partners >
      • Catholic Charities of KC-St. Joseph
  • Education
    • Pro-Life Issues >
      • Abortion
      • Adoption
      • Contraception & Birth Control
      • Death Penalty
      • Euthanasia & Assisted-Suicide
      • Fetal Development
      • Post-Abortion
      • Religious Freedom & Conscience Protection
      • Reproductive Technologies
      • Stem Cell Research & Human Cloning
    • Papal Encyclicals & Church Documents
  • Parish Ministry
    • Respect Life Coordinators >
      • Parish Respect Life Coordinator Sign-Up
    • Respect Life Committees
    • Prayers & Liturgies
    • Priests & Pastors
  • Public Policy
    • Contacting Elected Officials
    • Pro-Life Policy Advocacy Organizations
  • Resources
    • Abortion Pill Reversal
    • Pregnancy Resource Centers (PRC's)
    • Residential Pregnancy Homes
    • Adoption
    • Reproductive Technologies
    • Fetal Anomalies & Special Diagnoses
    • Post-Abortive Healing
    • Ethical Research, Therapies & Cures
    • End of Life Care & Documents
    • Religious Freedom & Conscience Protection >
      • USCCB Religious Freedom Week 2020
    • International Pro-Life >
      • European Refugee Crisis
    • Additional "Pro-Life" Resources
  • Contact Us